Barriers to successful patient and public involvement on guideline panels and strategies to overcome them

Session: 

Workshop session 6: Thursday, 16:00-17:30

Workshop category: 

  • Guideline development, adaptation, assessment and updating
Status

ID: 

WS57
Date and Location

Date: 

Thursday 14 September 2017 - 16:00 to 17:30

Location: 

Contact persons and facilitators

Contact person:

Facilitators: 

Corinna Schaefer
Richard Morley
Nancy Santesso

Acknowledgements:

Cowl J1, van der Weijden T2, Graham K3, Datar R4
1 National Institute for Health and Clinical Excellence, UK
2 Mastricht University, Netherlands
3 NHS HEALTHCARE IMPROVEMENT SCOTLAND, Scotland, UK
4 Consumers united for Evidence-based Health Care (CUE), US
Target audience

Target audience: 

Guideline Developers and Methodologists, patients and consumers

Level of difficulty: 

Intermediate
Type of workshop

Type of workshop : 

Discussion
Abstract

Abstract:

Objectives:
• To share international experience, problems and pitfalls and best practice examples of patient and public involvement (ppi) in guidelines;
• To identify barriers to successful ppi and to prioritise the barriers that are known to have much impact and to be influential;
• To analyse if there are specific strategies that may help to overcome the most relevant barriers;
• To share current methodological resources (e.g. G-I-N PUBLIC Toolkit, CUE’s video series) for ppi in guidelines with all stakeholders and discuss ways to build on them.

Description:
In a short introduction, participants will be asked to share their background and experience of patient and public involvement in guidelines. Voices of patients/consumers on their experience of involvement will be presented.
A brief presentation will present the results of a 2016 workshop held by G-I-N PUBLIC and CUE that tried to identify barriers to successful ppi and share the strategies that G-I-N PUBLIC and CUE have identified to overcome these barriers.
In small group breakouts, participants will add to the presented barriers based on their own experience. Results will be summarised collectively.
In an open discussion, participants will prioritise the most relevant barriers, identify strategies to overcome these and discuss if these are sufficiently addressed in current methodologies of ppi like the G-I-N PUBLIC toolkit and identify areas for improvement.